Thats it .. today is a NO. Up meds to 3x a day and try again tomorrow.

No for today....

I really knew this all along .... he has to be on oral meds at least two days before going home and he had a dose of IV meds yesterday morning. So .... we continue to wait and see what tomorrow brings.

Fingers crossed

Within the next 8 hrs we should know ... do we stay or do we go ...... meanwhile new pics below. I will share some Keifer humor while I am here ......  Mommy ? why do you have to sing ? can you please do it more quietly !   ..........  Mommy ? am I awake ?   ....... Mommy ? are you awake ? ...... I feel like I am a long way from home ....... ( I see him throwing something on the floor) Keifer what was that ?   Keifer : Not Me !!  I dont know !  ...... Bre to Keifer : Keifer what kind of soup is that you have ? Keifer : MINE ... lol ... Im going to use that one myself ....  me to Keifer : Keifer can I have a bite of your sandwich ? No .. mommy its not good for you ....

Rachel came by to see Keifer !!

Making snow angels.

Rachel and the girls.

Bday hat, apples, water,
Ipad but no sleep.

Finally 1am .. he is out and still holding the Ipad.

The never ending hospital stay continues......

X-ray today shows more fluid than yesterday ..... Dr.Kort says we will continue IV meds and add more today. I told him we want to go home... but he said it is a matter of finding the right combination and amount of meds to keep this fluid from getting bigger. Now we are talking earliest would be Monday. I asked nurse for a bigger room ... of course they all taken right now... try again tomorrow. Usually they move people to larger rooms when they think they may be here a while and save these small rooms for shorter stays. I would have said something a long time ago if I would have known that we would have been here this long. It also finally dawned on me that I have our stroller with me ... duh ... I put Keifer in it and walked ... much faster than pulling that dang red plastic wagon... we even went outside got some sun. Below are some new pics ... the first ones are the first day of eating again from a few days ago.... the rest is our current small home ... that little couch is my bed next to his.

His dad would be so proud .. he knew exactly what color to use !!

We have collected every Thomas book in hospital except the ones we left in ICU.
I told him I was going to go hide these and we go find them again.

Our room .... and my bed... good thing I'm short.

Watched them all a dozen times.

I'm going to start putting these on every door and window.

No chest tube today

Xray was better today so no chest tube for today ... but .... this was only with the help of IV diuretics. They now have to change him to oral meds  ... what he would be on at home and see if the fluid comes back .. so we bought ourselves at least two more nights here........could have been worse. Keifer has been ok .. eating and drinking the most I have seen him do in a month. Low fat diet around the other kids will be a little difficult when we get home. We go on walks and I pull him in a wagon and walk my route. It's pretty comical I am sure to watch us ...he is sitting there with usually a baggie of food and a drink and the Ipad... he waves at most people and everyone points. laughs, stare and talk to us. New goal for going home is Sunday.

Results of daily X-ray

Keifer has an xray every morning ..... today it shows fluid back again on right side. Not a lot but more than the day before..... the plan is to switch to IV diuretics to try to get rid of it ... but .... if xray tomorrow morning shows it is any bigger then ..... he will go back to ICU and we will have another chest tube put back in. I will update in the morning .... text messages or facebook is ok .. but other than that I need some quiet time... thanks for understanding.

Chest tube out

We moved out of ICU yesterday..... and of course he had to leave them in style .... his style that is. The previous three nights he had been falling asleep about 4am and sleeping till 2p .. so about 10 hrs sleep each night. then Mon night he only got 4 hours sleep .. so yesterday all day he was horrible. He bit someone on the hand when she tried to take his blood pressure. He finally wore his self out and literally fell asleep on his tray table. That was about 830p and he slept for 12 hours !! Thank God !! Because I was beyond my limit......but we survived yet another night. Day 11 today .....they took chest tube out and TPN stopped yesterday. He is on low fat diet and we are free to roam around..... but first Im going to a support meeting and then taking him for a long ride. Earliest we are looking to get out of here would be this Fri. Perfect !! because I have to be at another hospital next Friday with Bre !!! Lucky me ! Thank you for everyone who has kept in touch and sent me messages, cards, gifts, texts.....sometimes they came at a time when I really needed it.