Cardio visit

Today we saw Dr.Kao at Medical City for follow up. Keifer screamed bloody murder every time someone came near him.... he would not cooperate for the oxygen sats or blood pressure or EKG. Dr. Kao did listen to him and said she didnt hear a lot of fluid and lowered his dosage of meds per day. We go back again in two weeks. I have returned to work and we are right back to our crazy chaotic schedule we had before. We got some very lovely handmade cards and gifts in the mail from Brett and Mindy West's children ... thank you !!! The did a beautiful job on their cards to Keifer and included some of their toys to him. New pic below.....

First day home .... next round of Dr. and hospital visits for Keifer's sister

Now It's Bre's turn ..... luckily not any overnight stays ... but for those who dont know ... my oldest Breanna has inflammatory bowel disease .. its an auto immune disorder .... she has to take IV infused Remicade every 7 weeks to the tune of $27,000 a dose .. yes we have insurance .... but I still have to pay $1750 per person max deductible every year. This time its at Cooks Childrens Hospital ... We saw the GI Dr. today .. Keifer went with us ... Dr.Keng has been both of their doctor. Tomorrow is her infusion all day .... I cant be there with her as I normally do  ..... I have Keifer ... just so happens .. Bre has a new boyfriend and he and I had a conversation this week on Facebook while I was still in hospital and I discovered that he has an auto immune disease too .. he is currently in remission and he at one time was on Remicade also .... he wants to go with her .... she wants him too also .... we have been told before she can have a friend come ... so ...   I am allowing it.... it helps me out. Due to financial reasons .. I am returning to work 2 weeks early .... I was sick to my stomach over this decision..... I am devastated I wont have any down time between leaving hospital and returning to work full time... but I will do what I have to do for my family. This whole ordeal has taken more from me than I can put into words. I will return to work this Saturday. Keith will be home on weekends to be with Keifer and Mon and Tue Bre will be with Keifer. By next week he can return to daycare. He is cleared to return 4-6 weeks after surgery.Keifer follow up with cardio is on Wed.

Home

Yes  we are home ............

Hurry before they change their mind

We got the ok to go ... waiting on Keifer's dad ... he is out on a job right now ... and he drives like an old lady. But I say we need to get the hell up out of here before they change their minds......

GoFundMe

If anyone wants to make a donation I set up a site on GoFundMe at the suggestion of a friend ... to assist in being able to provide Keifer the continued care that he needs. Some of you know I don't like to solicit help .. and if you can't I do understand ... I'm just putting it out there and see what happens.... Thanks everyone ... hopefully we will know more tomorrow. link below
http://www.gofundme.com/3m8pg0

Thats it .. today is a NO. Up meds to 3x a day and try again tomorrow.

No for today....

I really knew this all along .... he has to be on oral meds at least two days before going home and he had a dose of IV meds yesterday morning. So .... we continue to wait and see what tomorrow brings.