One in a Dillon ..............

Okay I'm going deep on this one .....but some things happened recently that touched me. I meet and sometimes just learn of other families through a common link we share ... our kids ..... even more so .. our kids with medical conditions. Not just Keifer .... Breanna .... with her own medical condition and even Zack and Zoey with their ADHD .... I have met some wonderful people  ... found some great support. I have been lucky to meet a few in person ... others I just follow on Facebook ..... with all of our kids and where we live and my job I cant always make support group meetings and functions ... as a matter of fact I have only made one meeting ever for  the heart support group from Medical City. That group in particular though is a very close group ... I again wish I could join them but maybe one day ....they are all very kind and caring. One couple that is my age and with a son close to Keifers age .... has heart defect .. same hospital .. same surgeon ...friends on Facebook....... they came to see us in the hospital .. actually ran into them a few times .. July 4th , etc .... but as we were being discharged one time this summer ... this couple came to visit us and brought Keifer a gift and we talked for a little while ... they are just the sweetest couple ever. The father ...... passed away in his sleep  ..... at age of 39 .... on Keifers bday last month. I went to the funeral this past Monday ..........it was very emotional .... because .... lots of reasons ... but Im sitting there thinking about how  I came to be sitting there. I was there because we all have a common bond ... me and these other families ... our children ... with their heart defects..... and I watched the others around me and I knew so much about their kids and their journey. We are always so worried about our children not surviving with their hearts ...... but this time it wasnt a child. As Im sitting there then the preacher gets up and says someone is going to say some words  .... I was looking down ... I thought .. I dont know who he is.... but he started to speak and he was explaining who he was.... I knew him ... of him .. I never met them personally but I have followed their sons story for months .... their facebook page is Smiles for David .... he passed away this year .... and I remembered him .. and here was his father speaking at this fathers funeral. Wow ....and he did a great job .... he gave a very accurate honorable description of Dillon..... Im glad I went .... I was honored to have met Dillon and his wife Amy and their sweet boy Ethan. Amy wrote some very touching words to Dillon but what stuck with me was her statement ...... He was one in a Dillon ................

First .... Keifers New Room .......

There is not enough words to tell Special Spaces DFW how much of an impact they made to our lives... and to tell them thank you. They did way more than just makeover Keifers room ... it spread to other areas of our home and our front yard and the other kids and beyond .... way beyond. We appreciate everything they have done for us ......... funny though ... beyond the value of all the wonderful things they brought into our home and provided for us .....the best thing of it all was something very simple ....... sleep .... yes sleep  ... for those that know us .. Keifer has slept with us for the past 3 years ..... he is a night owl and he had a very bad throwing up problem that is undiagnosed and he has thrown up in his sleep before.... I havent slept well for years .. always listening for him or being woken up by him because he stayed up till 2, 3 , 4 am.......... Keifer has now slept in his Thomas bed in his new Thomas room every night since Oct 26th.......... I dont know if anyone can fully understand what this means to my whole family. Its HUGE........ really.I added some pics below ... enjoy .... and if you get a chance ..... do something good for someone ... no matter how big or small .... a cup of coffee .....groceries ..... whatever .... you may never know how much of a difference it could make in their lives.........