complete meltdown. .....

I'm doing this from my phone. ..so pardon any errors. ..lol. Ok ..The long awaited update from our last plane trip to St . Louis over thanksgiving.  Do you ever see those people with a fussy child throwing a temper tantrum?  Yep ....that was us......my kids pick the worst time to have them. Going there he was an angel. ...and everyone talked to him and complemented him. Coming back .....different child. He is 4 ....and we have had to walk a fine line due to his heart and his throwing up issue over the years. We did notice he was very tired that morning and may not have had enough sleep. He was playing on the iPad before boarding. ..I went across the gate to buy him m&ms ...He asked me if I bought them ..yes ...called for boarding. ...He pushes his umbrella stroller. ..to gate ...then he stops ......I had a sinking feeling. .....He says ....I wanted to go with you to buy the m&ms. ....?? .. still didn't know he was about to explode. ...still walking to the gate ...I wave the bag of candy and walk backwards. ..lol. At this point. ..my child has been replaced with a demon child ...He says ...I dont want those nasty m&ms. ..I want to go buy some with you ..... ??? He then says ...screaming. ...I'm not getting on the plane !!! ..... I'm thinking. ..yes we are !!! I've got football game I have tickets for ..High school play off game at cowboy stadium. ..hello!!! We proceed with this screaming child to gate ..we fight over the stroller. ...He calls the gate agents ..stupid idiots. ..I apologize. ...Keith says ..it's ok ..He could have said a lot worse .. lol....doesn't make it better dear. Screaming all the way down the jet bridge. ...grabs onto the door opening as I carry him on plane. Screams all the way to seat. ....flight attendant. ...greeting us ...did not take enough caution to stay out of striking range ....stop he leans over to us to speak to us and Keifer pops her on her shoulder. ...I apologize again. ....sigh. Get to our row....He won't sit ..I have heavy purse and laptop on my shoulder. ...yell to Keith. ...get this stuff off please! !! He helps. ....now ladies. ..here is where men don't pay attention to details. ...I NEVER put my purse in overhead. ....NEVER ... always keep it and any bag I have under seat in front of me.  He rolls my stuff up and puts in overhead. Now this is my fault. ...I remember. ....my half drunk Starbucks is in my purse !!!! Keifer is still screaming ..now I'm screaming. .oh no!! My drink is in my purse! !!! Dirty look from Keith. ..lol...retrieves my purse ..I save my phone and iPad. ...sit down. ...now I have to get this screaming child to stop and sit in his seat and seat belt on. HA! I kept thinking they were going to escort us off!! Finally I patted his back and he finally shut up and yawned.  I got him in his seat and belt on. We get in the air and he looks at me and says ...I feel much better now.  Oh really! !! That's great. ..now we are going to have a talk !!!! We discussed what happened and he said he was sorry.  Then for the last hour of the flight he proceeds to recite Thomas the train stories in a loud voice. ..gives me a train to play and tells me what to say ..sound effects ..everything. ..replays the same scene over and over. . About trains crashing! !! Can you please not use the word crash! !!! Flight attendant. ..yes same one. .comes by...oh I see he is feeling better now and entertaining the whole plane with his Thomas stories. ...lol..  so next time if you see someone that has a child having a meltdown. ...just look the other way ..lol...and sympathize. ...trust me I wanted to spank him. ...but it would not have helped at that point. ...it could have also made him throw up and I definitely would have made it own you tube. Wish us luck today as we try again today !

One in a Dillon ..............

Okay I'm going deep on this one .....but some things happened recently that touched me. I meet and sometimes just learn of other families through a common link we share ... our kids ..... even more so .. our kids with medical conditions. Not just Keifer .... Breanna .... with her own medical condition and even Zack and Zoey with their ADHD .... I have met some wonderful people  ... found some great support. I have been lucky to meet a few in person ... others I just follow on Facebook ..... with all of our kids and where we live and my job I cant always make support group meetings and functions ... as a matter of fact I have only made one meeting ever for  the heart support group from Medical City. That group in particular though is a very close group ... I again wish I could join them but maybe one day ....they are all very kind and caring. One couple that is my age and with a son close to Keifers age .... has heart defect .. same hospital .. same surgeon ...friends on Facebook....... they came to see us in the hospital .. actually ran into them a few times .. July 4th , etc .... but as we were being discharged one time this summer ... this couple came to visit us and brought Keifer a gift and we talked for a little while ... they are just the sweetest couple ever. The father ...... passed away in his sleep  ..... at age of 39 .... on Keifers bday last month. I went to the funeral this past Monday ..........it was very emotional .... because .... lots of reasons ... but Im sitting there thinking about how  I came to be sitting there. I was there because we all have a common bond ... me and these other families ... our children ... with their heart defects..... and I watched the others around me and I knew so much about their kids and their journey. We are always so worried about our children not surviving with their hearts ...... but this time it wasnt a child. As Im sitting there then the preacher gets up and says someone is going to say some words  .... I was looking down ... I thought .. I dont know who he is.... but he started to speak and he was explaining who he was.... I knew him ... of him .. I never met them personally but I have followed their sons story for months .... their facebook page is Smiles for David .... he passed away this year .... and I remembered him .. and here was his father speaking at this fathers funeral. Wow ....and he did a great job .... he gave a very accurate honorable description of Dillon..... Im glad I went .... I was honored to have met Dillon and his wife Amy and their sweet boy Ethan. Amy wrote some very touching words to Dillon but what stuck with me was her statement ...... He was one in a Dillon ................

First .... Keifers New Room .......

There is not enough words to tell Special Spaces DFW how much of an impact they made to our lives... and to tell them thank you. They did way more than just makeover Keifers room ... it spread to other areas of our home and our front yard and the other kids and beyond .... way beyond. We appreciate everything they have done for us ......... funny though ... beyond the value of all the wonderful things they brought into our home and provided for us .....the best thing of it all was something very simple ....... sleep .... yes sleep  ... for those that know us .. Keifer has slept with us for the past 3 years ..... he is a night owl and he had a very bad throwing up problem that is undiagnosed and he has thrown up in his sleep before.... I havent slept well for years .. always listening for him or being woken up by him because he stayed up till 2, 3 , 4 am.......... Keifer has now slept in his Thomas bed in his new Thomas room every night since Oct 26th.......... I dont know if anyone can fully understand what this means to my whole family. Its HUGE........ really.I added some pics below ... enjoy .... and if you get a chance ..... do something good for someone ... no matter how big or small .... a cup of coffee .....groceries ..... whatever .... you may never know how much of a difference it could make in their lives.........

Four years ago ........

Wow .. this is a hard month for us.. for me ... Brandon my oldest son was born on October 4th .. almost 3 weeks early !! My water broke at work !! My always funny, sarcastic and sweet father in law passed on Oct 10 th ....  which his death lead to a series of events including discovering Keifers heart defect ..... I was given one week to prepare and be induced ... I chose my mother in laws bday Oct 29th.. she had just lost her husband so why not give her the best bday present that I could .... a grandbaby ! Here we are now ... 3 open heart surgeries later ..... and a lot of bumps along the way............ We also found out yesterday that our beloved dog Kola ...... has stage 4 kidney failure...... I dont even know how to tell the kids..... Ive been sad for 2 days now. This dog has brought so much into our lives and has loved us unconditionally. We are going to try some medicine and IV treatment but even it is beyond our budget.... after this if he doesnt respond or takes a turn for the worse we will have to put him to sleep. I am dreading this immensely. On a brighter note.... Keifer is getting a room makeover from a fabulous organization called Special Spaces ... they are coming to makeover his room and they are sending all of us to the FT.Worth Zoo for the day !! When they are done we will come back to the house for the unveiling of his new room ! They also are going to have a special bday surpirse for him and a cake !! Keith's family is flying in and everyone is coming to our house Saturday to help us celebrate and see his new room ! We miss our family very much and are very excited to share this very special weekend with everyone. Besides being a very memorable month it is also a very busy month.... school is in full swing and football season for Brandon.... Halloween is around the corner as well. And we have Breanna with her medical condition .... she is having some issues and has had bloodwork run 4 times and now will be scoped in less than two weeks. Please keep her and Keifer and Kola in your prayers........ More updates over the weekend and pics !

Percy for Halloween

Letters for his room.

Special Spaces working on his room!!

Keifer and Crew Update !!!!!!!!!

It's been a while right ?  I know .. I know .. we got super busy ever since we got home from the hospital. I had two days off then back to work.... and the two days I was off was spent taking Bre to Dr. appt and IV infusion at hospital. Keifer has been doing well .. he is still on 4 meds a day and low fat diet ... um .. except those M&M's he has sometimes.... went to cardio Dr a few times and now she doesnt have to see him for 4 months !!!!! Great !!! It is back to school time ...... even more things to do ... like I needed more ?!?  Football games , school events , football games , work , football games , Dr. appts ,,, etc ... etc .....  I did get in touch again with Special Spaces and they came to our house to meet Keifer and check out his room. They are planning on doing his room makeover on Oct  26 ! Just in time for his bday .... they send us on an outing for the day so they can make his room over and when we come back to see it complete they are going to have a special bday surprise for him !!!!! We are very grateful and are looking forward to it. Meanwhile I still need to get a hold of make a wish and get the ball rolling on that and my work who sponsors families every year wants me to try to coordinate with them and they will see about doing some wish enhancements for Keifer ...... that would be very special. Also when I went back to work .. my very kind and thoughtful coworkers gave me a card filled with money over $200 and was very much needed and appreciated. My sister and mom continue to help us as well and we thank them greatly...... new pics below... enjoy.

First Day of School

Rare moment of sleep.

Me giving back .. blood.

Cardio visit

Today we saw Dr.Kao at Medical City for follow up. Keifer screamed bloody murder every time someone came near him.... he would not cooperate for the oxygen sats or blood pressure or EKG. Dr. Kao did listen to him and said she didnt hear a lot of fluid and lowered his dosage of meds per day. We go back again in two weeks. I have returned to work and we are right back to our crazy chaotic schedule we had before. We got some very lovely handmade cards and gifts in the mail from Brett and Mindy West's children ... thank you !!! The did a beautiful job on their cards to Keifer and included some of their toys to him. New pic below.....

First day home .... next round of Dr. and hospital visits for Keifer's sister

Now It's Bre's turn ..... luckily not any overnight stays ... but for those who dont know ... my oldest Breanna has inflammatory bowel disease .. its an auto immune disorder .... she has to take IV infused Remicade every 7 weeks to the tune of $27,000 a dose .. yes we have insurance .... but I still have to pay $1750 per person max deductible every year. This time its at Cooks Childrens Hospital ... We saw the GI Dr. today .. Keifer went with us ... Dr.Keng has been both of their doctor. Tomorrow is her infusion all day .... I cant be there with her as I normally do  ..... I have Keifer ... just so happens .. Bre has a new boyfriend and he and I had a conversation this week on Facebook while I was still in hospital and I discovered that he has an auto immune disease too .. he is currently in remission and he at one time was on Remicade also .... he wants to go with her .... she wants him too also .... we have been told before she can have a friend come ... so ...   I am allowing it.... it helps me out. Due to financial reasons .. I am returning to work 2 weeks early .... I was sick to my stomach over this decision..... I am devastated I wont have any down time between leaving hospital and returning to work full time... but I will do what I have to do for my family. This whole ordeal has taken more from me than I can put into words. I will return to work this Saturday. Keith will be home on weekends to be with Keifer and Mon and Tue Bre will be with Keifer. By next week he can return to daycare. He is cleared to return 4-6 weeks after surgery.Keifer follow up with cardio is on Wed.

Home

Yes  we are home ............

Hurry before they change their mind

We got the ok to go ... waiting on Keifer's dad ... he is out on a job right now ... and he drives like an old lady. But I say we need to get the hell up out of here before they change their minds......

GoFundMe

If anyone wants to make a donation I set up a site on GoFundMe at the suggestion of a friend ... to assist in being able to provide Keifer the continued care that he needs. Some of you know I don't like to solicit help .. and if you can't I do understand ... I'm just putting it out there and see what happens.... Thanks everyone ... hopefully we will know more tomorrow. link below
http://www.gofundme.com/3m8pg0

Thats it .. today is a NO. Up meds to 3x a day and try again tomorrow.

No for today....

I really knew this all along .... he has to be on oral meds at least two days before going home and he had a dose of IV meds yesterday morning. So .... we continue to wait and see what tomorrow brings.

Fingers crossed

Within the next 8 hrs we should know ... do we stay or do we go ...... meanwhile new pics below. I will share some Keifer humor while I am here ......  Mommy ? why do you have to sing ? can you please do it more quietly !   ..........  Mommy ? am I awake ?   ....... Mommy ? are you awake ? ...... I feel like I am a long way from home ....... ( I see him throwing something on the floor) Keifer what was that ?   Keifer : Not Me !!  I dont know !  ...... Bre to Keifer : Keifer what kind of soup is that you have ? Keifer : MINE ... lol ... Im going to use that one myself ....  me to Keifer : Keifer can I have a bite of your sandwich ? No .. mommy its not good for you ....

Rachel came by to see Keifer !!

Making snow angels.

Rachel and the girls.

Bday hat, apples, water,
Ipad but no sleep.

Finally 1am .. he is out and still holding the Ipad.

The never ending hospital stay continues......

X-ray today shows more fluid than yesterday ..... Dr.Kort says we will continue IV meds and add more today. I told him we want to go home... but he said it is a matter of finding the right combination and amount of meds to keep this fluid from getting bigger. Now we are talking earliest would be Monday. I asked nurse for a bigger room ... of course they all taken right now... try again tomorrow. Usually they move people to larger rooms when they think they may be here a while and save these small rooms for shorter stays. I would have said something a long time ago if I would have known that we would have been here this long. It also finally dawned on me that I have our stroller with me ... duh ... I put Keifer in it and walked ... much faster than pulling that dang red plastic wagon... we even went outside got some sun. Below are some new pics ... the first ones are the first day of eating again from a few days ago.... the rest is our current small home ... that little couch is my bed next to his.

His dad would be so proud .. he knew exactly what color to use !!

We have collected every Thomas book in hospital except the ones we left in ICU.
I told him I was going to go hide these and we go find them again.

Our room .... and my bed... good thing I'm short.

Watched them all a dozen times.

I'm going to start putting these on every door and window.

No chest tube today

Xray was better today so no chest tube for today ... but .... this was only with the help of IV diuretics. They now have to change him to oral meds  ... what he would be on at home and see if the fluid comes back .. so we bought ourselves at least two more nights here........could have been worse. Keifer has been ok .. eating and drinking the most I have seen him do in a month. Low fat diet around the other kids will be a little difficult when we get home. We go on walks and I pull him in a wagon and walk my route. It's pretty comical I am sure to watch us ...he is sitting there with usually a baggie of food and a drink and the Ipad... he waves at most people and everyone points. laughs, stare and talk to us. New goal for going home is Sunday.

Results of daily X-ray

Keifer has an xray every morning ..... today it shows fluid back again on right side. Not a lot but more than the day before..... the plan is to switch to IV diuretics to try to get rid of it ... but .... if xray tomorrow morning shows it is any bigger then ..... he will go back to ICU and we will have another chest tube put back in. I will update in the morning .... text messages or facebook is ok .. but other than that I need some quiet time... thanks for understanding.

Chest tube out

We moved out of ICU yesterday..... and of course he had to leave them in style .... his style that is. The previous three nights he had been falling asleep about 4am and sleeping till 2p .. so about 10 hrs sleep each night. then Mon night he only got 4 hours sleep .. so yesterday all day he was horrible. He bit someone on the hand when she tried to take his blood pressure. He finally wore his self out and literally fell asleep on his tray table. That was about 830p and he slept for 12 hours !! Thank God !! Because I was beyond my limit......but we survived yet another night. Day 11 today .....they took chest tube out and TPN stopped yesterday. He is on low fat diet and we are free to roam around..... but first Im going to a support meeting and then taking him for a long ride. Earliest we are looking to get out of here would be this Fri. Perfect !! because I have to be at another hospital next Friday with Bre !!! Lucky me ! Thank you for everyone who has kept in touch and sent me messages, cards, gifts, texts.....sometimes they came at a time when I really needed it.

Apple Juice and Graham crackers = Heaven :))))))))

YES!!!!!! Finally !!!!!! look below .. smiles , food and drinks and painting.... just like his mommy sometimes ..lol

Maybe maybe turning a little corner

He is still draining from chest tube but it has dropped some ... hate to get our hopes up. Keifer has been less grumpy the last 24 hours ... he has been singing and painting and smiling and walking. He still talks about food all day and night but ow he tells me what he is going to eat when we get home. We had a few visitors the last few days .. Cherrylynn and her family ... Keith everyday and Bre and Granny stopped by. I was out of protein and my friends in my support group for weight loss surgery brought me some when we met for early dinner today ... yes .. I got out for a few hours !!!! It was great !!! We went to the Grand Lux at the Galleria .... I guess they are owned by same company as Cheesecake Factory... almost identical .... very good! Keifer also got SIX new DVDs from his cousins ... thank you Sarah, Kevin and family. They are playing nonstop as we speak. Tomorrow we will see what Dr. has to say about drainage and how much longer on TPN. Below is a new pic of Keifer and one of me !

Glad the holiday is over...

Yesterday was no party around here. It was very difficult to hear and read about everything going on. We are extremely isolated. I appreciate everyone's messages and encouragement ... sometimes there is just not much you can do to make it better. Thank you to Lisa and her family for stopping by last night when they could have been out watching fireworks ... Lisa was able to engage Keifer in some puzzles and get his mind off of food and he walked around ICU a few times..... also I was able to step away for a minute for a quick small bite to eat. Keifer was up till about 4am .... and he is still asleep now...... I can assure you there is nothing more painful and emotionally draining to hear your child all night long calling out your name and telling you he is hungry ..... and he wants to go home ..... and he wants peanut butter and graham crackers ....... and to please go get it for him. I simply cant put into words the torture we are both going through. Please give me strength to make it through this. Dr. will reevaluate on Monday where we stand.

Me on Facebook... Keifer on You Tube

Pics from today

Latest pic of Keifer

Keifer is settled in his heart ICU room.... he is still sedated..... they had to do extra sedation because they had to do the picc line over again because xray showed it was looped inside him. Nothing else to say but wait for him to wake up. Here are some new pics meanwhile....

It's a Yes ......

We are headed to ICU soon .. been waiting all morning .... the pic team is standing by. The pic line will go in his arm rather than shoulder and he will be out during the procedure. Seven days in ICU and then several more days back on floor to re introduce food and see if fluid comes back again before we can go home... I known others who have to do this and after that first initial reality check of no food .. they start to adjust and accept it. But .... imagine the heartbreak as he sits here waiting and he is begging me for food as I write this ..... sandwiches .. peanut butter and jelly. :((((

Tomorrow morning is decision time.....

Sorry .. I didnt realize I forgot to update .. lol. We left ICU yesterday and was taken to step down unit ... rooms were all full so we got a small room they knicknamed the closet ..... no joke ...
I had no bed ... just a chair that kinda reclines .. only if you apply pressure nonstop to back of it ...my body is in so much pain. Keifer last night ate a bunch of grapes and graham crackers with peanut butter. During the night his oxygen dipped in the 60s and they had to put him back on oxygen thru his nose. They also noticed his tube was full of liquid not draining.... he has a morning xray bedside as well... shows his right side again was full of fluid again .. it came back. This makes his lungs not able to expand enough and get oxygen .. so thats why it went down. They readjusted his tube and kept him on oxygen for a while .... another 400ml drained out .. we are over 1400ml now ...after that he slept half the day .. was told because he didnt get good sleep overnight with all that liquid sitting there .... I layed my head at foot of his bed and slept some too.  He didnt want to eat or drink till late this afternoon..... that also is a struggle because they put him on a low fat diet and I have to call room service and use a special menu and they count the fat grams when I order.... well ... he didnt eat his breakfast he was sleeping ... and the lady taking lunch order told me I had reached my limit and wouldnt be able to order more ... like dinner ... they dont count that he doesnt eat it ... I spoke to nurse and told them to fix it .. or I will go buy my own food for him ... he needs to have access to food and drink at all times so when he does finally eat .. it is here. (DUH) Oh thats handled. Now the big thing .................. Dr.came in to see me ..... lol .... I could see on her face she didnt have the best news to tell me...... so ... the plan is this .. he is still draining too much fluid ... they added some meds today to help dry him out and IV fluid to replace some so he doesnt get too dry...in the morning they will do the next chest xray and check the fluid amount of drainage ..... and if it is still too much ... they will send us back to ICU and he will go on TPN ..total parenteral nutrition .. basically everything you need from a tube.... he would get a pic line put in his shoulder .. again .. and he would be NPO.. meaning nothing by mouth ... for ... get this ...........SEVEN days !!!!!!!!!!!!! and then he would still be here for several days after that to be watched after he begins to have food again and see if liquid comes back ...... we could be here for two weeks !!! Damn !!! The Dr. is pretty certain this is going to happen and already has the pic team in place and scheduled and everything lined up .... we got to move to a bigger room down the hall so I have a bed now ....we made him walk to new room ....its actually bittersweet to watch him .... he is struggling to walk and in some pain and makes these noises like a baby lamb or something... but its also comical at the same time .. he is just a diaper and his Thomas socks and tubes and IVs and stuff coming out of him .... and as we get him settled into the bed .. I help arrange all his medical equipment and I see the long chest tube ... filled .. entirely with fluid ..... and as I look at it now .. it is filled again...... we shall see what the morning brings ............ until then ...... good night

used to be my Ipad

my bed last night

Reality Check

We have been really lucky over the past few years compared to others..... not a lot of issues with his heart and cardio check ups every 3 to 6 months. I read about lots of others who require more care..... and ours is about to increase. This fluid build up is no joke ..... they take it very seriously .. in patients like him with the fontan surgery fluid is crucial ..... too much can cause problems and he needs to stay hydrated at all times. He will need to be closely monitored for I dont know how long ..... we are talking weekly visits with his cardio Dr. here at Medical City .......chest xrays , etc .... wow. He also will need to be on a low fat diet for at least 6 weeks. The fluid is serous which has fat in it .... his body is having a problem processing fat .. can happen when his body is disturbed by all these surgeries .. his lymph nodes are effected and secrete this liquid. Here is one article that sheds a little light on it http://www.buzzle.com/articles/draining-fluid-from-lungs.html . We had a new GI dr come by that I have heard good things about ... he was very nice Dr. An and  I will be switching Keifer to him. He thinks it is wise to do a scope .. upper GI on him again because last one was Jan 2012 .. so not right now this stay but a future time this year at Medical City. We may do a swallow study as well and ENT consult soon. I just keep telling everyone thank you. Since I'm in ICU i cant talk on my phone so sorry Im not very accessible that way right now .. text is always best for me anyways. But that is also why I have this blog so you can come here for updates.... (Hi Mom) ... so please everyone understand ... I also dont feel like talking alot .. Im still trying to absorb all of this stuff. So we will be spending the 4th of July in hospital .... Dr. Kao said we will be here 5 to 6 days...... this is my second time to spend July 4th in hospital last time was with Breanna in 2011. Our support group Amazing Little Hearts will be serving a meal that I plan to go to. We usually are in St.Louis for this holiday but will be there next year for sure. We are ok ...... he is stable .... they want to keep him in ICU a little more .. but may go to the floor later tonight or tomorrow. No new pics right now ..... A lady came by with music and a guitar.... he was very annoyed but he didnt want her to leave or stop singing either ... he put his hand over his mouth so we couldnt see his facial expressions.... and she had a student following her that did hand motions and he would yell at her because he wanted her to stop ... LOL .....now that I will admit is his mother in him.........

Improvement but little steps....

Keifer's heart rate was 198 for hours ... finally down to about 110 but when he coughs on phlegm it goes up to 140 range. Also his oxygen when coughing is 70 with oxygen in his nose at a 2 but they turn it up to 4 and he stables out at 85ish .. so now down to a 2 again. Thomas is on nonstop .... he still refuses to eat or drink. The fluid build up is something called pleural effusion ... A pleural effusion is a buildup of extra fluid in the pleural space, which is the space between the edge of the lungs and the chest wall. Then Dr. said something about it coming from his lymph nodes and it is common from surgery but not as common to keep secreting this liquid so much for so long.They drained a lot of fluid so far and his stats are improving but go up and down ... and they are trying to wean him off oxygen tonight.He had really labored breathing with a grunt noise he made every breath .. it subsided while he slept earlier but now he is awake it is back again. With each new Dr. and nurse and RT and everyone when shift changes I have to repeat our entire story , symptoms and causes ... gets very annoying .. and we all know I dont get annoyed easily right? Fluid that drained off is up to 700 ML so far .....

Keifer back in ICU

I knew yesterday that he was not progressing .... he only had one bite of food and little to drink. He tells us now that he doesnt want anything because it will make him throw up ... the phlegm is what he is talking about. About 10p last night he ran a fever of 102.2 ... Keifer has never had a fever that high... he rarely ever gets any fever. I left message for cardiologist to call us back and packed our bags while I waited..... and  he said go back to ER at Medical City so here we are ..... we didnt get into a room until about 4am ... they first thought it was pneumonia but now say it is fluid built up outside his right lung. The plan is sedate him and insert a new chest tube to drain the fluid ...... so im eating breakfast now and waiting for them to finish.... they told me it was going to be after rounds and changed it to before rounds.. so Keith didnt make it back up here. I will update as soon as I know more.....

this was in the ER at 3am

First week home

We have been home now for a week. Keifer is ok but its still a struggle on meds, drinking and eating. I called cardiologist and may take him to see her on mon or tue ...we do have appt right now on fri jul 5. Keifer got some very cool stuff in the mail..... Jennifer sent him a Monster Inc Build A Bear and a beach towel ...very cool....thanks Jennifer and some of my coworkers in Argentina sent cards for Keifer complete with translations...lol...thank you Isabel. I will update again after I taker Keifer to Dr. soon. Thanks everyone.....

Glad to be home ...

Keifer is doing ok .... thanks for checking on him .... I still struggle with getting him to eat .... he will drink some juice and milk and water. He will eat once or twice a day .. some of it comes up .. he coughs on and off .. some junk comes up as well. Overall he is ok ..... will be back to see cardiologist in the next 10 days. More pics soon....

Guess where we are .. look at pic below

We are home !!!!! after 10 long days ............ finally ..... we are so happy. We are going to take some time to relax and spend some family time together. Hope everyone has a good weekend and I will update tomorrow ... more pics below ...... enjoy