Glad the holiday is over...

Yesterday was no party around here. It was very difficult to hear and read about everything going on. We are extremely isolated. I appreciate everyone's messages and encouragement ... sometimes there is just not much you can do to make it better. Thank you to Lisa and her family for stopping by last night when they could have been out watching fireworks ... Lisa was able to engage Keifer in some puzzles and get his mind off of food and he walked around ICU a few times..... also I was able to step away for a minute for a quick small bite to eat. Keifer was up till about 4am .... and he is still asleep now...... I can assure you there is nothing more painful and emotionally draining to hear your child all night long calling out your name and telling you he is hungry ..... and he wants to go home ..... and he wants peanut butter and graham crackers ....... and to please go get it for him. I simply cant put into words the torture we are both going through. Please give me strength to make it through this. Dr. will reevaluate on Monday where we stand.

Me on Facebook... Keifer on You Tube