Another night........

We are here still ..... the only thing keeping us now is his potassium is at a 2.3 which is very low and scares me and a little low on sodium/electrolytes. He did eat some of a Happy Meal his dad brought him last night. Today he has had chicken strips and kept down so far. One dose of potassium came up with a little blood and second dose later today so far he has kept down ... last resort will be IV. He has walked several times , been to playroom , rides in the wagon, gift shop and taco place. I got his Beads of Courage updated from his first open heart surgery when he was born and next I have to do his second surgery ... starting to be a really long necklace.

 

P.S. the nurse just came in and said lab work this evening shows potassium is 3.8 ... this is acceptable range ... so still trying to get home tomorrow...........