If Mommy says no ... ask Daddy

He is semi-awake off and on. Dr.M came and took out a wire and catheter was removed and one arterial line in his groin gone as well. He has been crying a lot and begging me for juice .. for a while he could not have any .. and he said .. I want it right NOW ! I said no and he then started saying .. I want Daddy !!  Finally he was able to have juice and he wanted to do it himself... he is restricted on how much he can have .. too much liquid can make his heart work too hard. He was offered soup and didn't want it and he got a  popsicle he called a lollipop .. he said he wanted to lick it. He also found scissors and they are just plastic to clamp lines with so they let him hold those for a while. Oxygen dipped into the 70's so they put him back on oxygen thru his nose ... which he keeps pulling out. He got another bag full of stuff from Amazing Hearts .. its the support group for heart kids at our hospital that I have only had time to go to once in three years .... and a coworker submitted for him to receive another gift from a nonprofit group called Emily's Smile Boxes  .. google them or look for their Facebook page .. she said we should get it this week! Also making more new friends here in hospital I hope to meet soon.

the scissors

Thomas